Ouch.

Pain is dark.

It’s quiet and lonely and heavy and it throbs.  It sure can take your breath away. It’s a hard thing to explain to somebody even when they are desperately trying to understand how much it hurts. There is not a lot of sound here.  I can hear the ceiling fan and a random giggle from downstairs that feels good and also a little sad. Even now, I am lying on my side and I’m staring at a picture of my kids, trying to cope with every joint in my body hurting.  I want to scream the F bomb.

Here is my view:

There are some interesting things in this picture..Thor’s unmade side of the bed, Cracker’s lost boot: the reason she had a 34 minute before-school tantrum on Friday morning…Whoop, dere it is!  Found it, you little brat. (That’s OK, mommy loves you.)

I know you want to know about the camera. (Insert 70’s porn music here). TOO BAD!!! No kinky shenanigans.  Just my pals trying to bring music to ME while in confinement…we made a little music video. If you have an extra 14 minutes and 36 seconds just lying around, check it out.  It’s a sweet examination into the compassionate world of friends who will do anything to make you feel better.  But wear your low expectations hat because I was trying to sing sick in bed with a vacuum attached to my belly.  Vacuum belly!!! It’s mission? To suck out Ghostbusters slime grossness out of my wound.   That Vac was a constant companion….I called it “my little friend.” But you have to say it out loud with the Tony Montana Scarface accent. You try it.  Say it:”my little friend.”  Say it again.  “My little friend.” So fun, huh?  That vac went everywhere with me.  It was like carrying around the grossest purse in the world.  But I couldn’t go anywhere for long because of it.  I could only run around in social circles and with gangs that had a lot of outlets handy…here’s the video!

The Sick Sessions with Gritman&Moran
But seriously.  Go back to the above photo and look at that picture of my kids, taken on our favorite beach in Naples.  Omg.  It’s precious to me and I’ll never forget that moment. That picture in itself is an anti-inflammatory for the soul; it’s OxyContin for my heart; it’s a Kleenex, stopping the trail of my tears. I have been staring at it in pain for a over a month. It’s the best gift I’ve ever gotten….a beautiful soul had it blown up for me.  Thank you, my sweet, red-headed friend. 

At this point, I am not really feeling any pain from the surgery. My wound is kind of closing up and I am just weak from being laid up so long. I was able to scrounge my way through a couple of gigs and run a few errands but now I’m back in bed jail. And it’s not even really from the earlier craziness.  It’s due to a medical condition I have had for about 6 years.  Most of the time you would never even know I have it.  It’s called Rheumatoid Disease aka Rheumatoid Arthritis aka RA aka Evil Bitch From Hell. They changed the name from RA to add the word “disease” because it’s a nightmare of an auto-immune disorder. And frankly, the RA powers that be were probably sick of people not understanding it.  Like every time they mentioned that they had rheumatoid arthritis to the person talking to them, the other person would inevitably start complaining about how their knuckles hurt when it rains. Not the same thing. Weather has nothing to do with this.  Here is what it is, deftly illustrated by a select chosen lot of drunk people dancing:

Immune system broken….like going all crazy on itself…like THIS…but instead of flouncy dancing at your joints, it’s punching them…like THIS. Humira, a miracle drug that I shoot in my thigh every week, calms my immune system down so it’s like THIS. You get the idea. Dance like no one’s watching.  (But we are.). (And we’re laughing.)

Th whole mess happened because sometimes when I’m on the drug, my immune system can’t fight anything. So if I get, let’s say a random chest cold or a stupid little bug bite, unlike most people, my body can’t fight it. It’s one of the more rare side effects of the drug, like I think it’s written near the bottom of side effects on the warning label, listed under “spontaneous eyeball bleeding.” It rarely happens, but this is how lucky I am! Weeeeee!!!

The hospital stories are coming next. But I’m grossed out.  I am a person who does not handle anything yucky well at all.  For instance, If you are walking with me on the street and you lean over and you spit, I will throw up.  When I clean a toilet, I do it while I am dry-heaving.  If you have an eye-related incident, you’re going to have to go to somebody else with it. And when my kids spurted any blood throughout their childhoods, I have been known to completely run the other way. There is also a very large unrelated issue with clowns.  So you can imagine how traumatizing it was for me to be in the hospital with a gaping, staph-infected hole in my stomach.  I was never able to even look at it.  But everyone else in the free world sure did!  And I was really good at reading everyone’s face when they were looking at it so I could tell how bad it really was.  I’m nothing if not painfully observant. My husband Thor tried to take pictures of it and I groggily threatened divorce.  A very good friend came to visit me and I was happy to see him until he (1) tried to plan with another visiting friend on how they could get their hands on my morphine and (2)tried to take a picture of my wound and start a public fan Facebook page. I know. Funny but awful.  

So I think tomorrow I will start writing about all those gross things but I just can’t bear to do it today. 

And here we are. I’m banned from Humira for another month and everything hurts. EV-ER-EE-THING. I’m sorry, but I’m whiny.  I have a whole in my stomach the size of the Grand Canyon, medical professionals keep sticking their fingers in it, my family has been through hell, my dream job fired me, I have missed countless gigs so I’m broke as hell and I have sunk so low trying to entertain myself, that I am currently binge-watching The Nanny. Do NOT tell anyone that.

But this is not how I’m going to play this. A pity party is not how I’m going to choose to handle this.  It’s beneath me.  It’s going to go down exactly like this:

I have a great bed. Cable has not been shut off yet. Look at my kids, please. They’re adorbs. My husband Alpha, the best man in the world, would definitely be Knighted by the Queen if we lived in Great Britain. My parents are incredible; all of them. I have this ridiculously fantastic nurse who came to my house and she healed me inside and out and she was so nice, she didn’t even try to tie wood chunks on my ankles and break them so I couldn’t run away. (Great movie) Voice text on my iPad is the BOMB. I have so many incredible friends who are so loving and giving, I could spaz out with love for them. And I get to sing, sing, sing with my homies and I get to sing, sing, sing for people that I love. I have a house, I drive the Blueberry and I live in the best town in the land.  Soon my gaping wound will be gone, “my little friend” The Vac will be returned, cleaned, sanitized and sent off to suck Ghostbusters slime out of some other poor bastard. I will be back on Humira and no one will know that I even have this stupid disease. I will get a new job, have a kick ass summer on Bangs Lake and watch a buttload of Alpha playing lacrosse.  And most importantly, I will always have the memories of the time when I desperately needed a village and the village came running. 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: